Blood disorders have shaped my life in a deeply personal way, not because I live with one myself, but because someone I love does. My best friend Jonathan has sickle cell disease, a chronic and often painful blood disorder that affects every part of a person’s life—school, work, health, and daily activities. Growing up alongside him, I witnessed the silent battles that families affected by blood disorders fight every single day. I saw the unpredictable pain crises that would stop him mid-sentence, the hospital stays that interrupted his childhood, and the emotional weight his mother carried as she advocated for him while trying to keep her family strong.
These experiences opened my eyes early to the reality of what blood disorders do—not just to the body, but to the family, finances, and emotional wellbeing of those involved. They also introduced me to the part of healthcare that can’t be taught in textbooks: compassion, advocacy, and the courage it takes to support someone living with a lifelong condition.
Jonathan’s mother founded the Children’s Sickle Cell Foundation Inc. to create support, education, and community for families affected by sickle cell disease. I began volunteering with the organization as a teenager, helping at events, supporting children during activities, and learning more about the medical and social challenges sickle cell families face. Over the years, I became deeply connected to both the mission and the families. Eventually, I transitioned from volunteer to staff, where I helped coordinate programming, support parents, and create welcoming spaces for children navigating hospitalizations, fatigue, and uncertainty.
Working with this foundation fundamentally shaped my understanding of chronic illness and community support. I saw how much misinformation existed about sickle cell disease, especially since it disproportionately affects minority communities. I saw how stigma, lack of awareness, and limited resources make managing a blood disorder even harder. And I also saw the incredible resilience of these families—how they carried joy, hope, and togetherness through challenges most people never have to face.
These experiences are the reason I am pursuing a healthcare career today. I want to raise awareness about blood disorders by advocating for health education, speaking about sickle cell disease in academic and community spaces, and working to bridge the gaps that patients experience in the healthcare system. As a nursing student with plans to eventually attend medical school, I want to become a provider who is knowledgeable, compassionate, and culturally aware—someone who understands not only the disease but the person living with it.
In the future, I hope to continue working with organizations like the Children’s Sickle Cell Foundation Inc., especially to expand outreach in schools, churches, and underserved communities. Awareness saves lives. Awareness improves early detection, encourages genetic testing, and breaks down stigma. Most importantly, awareness helps families feel seen, understood, and supported.
The impact sickle cell disease has had on my best friend, his mother, and the countless families I’ve met through the foundation has shaped not only my educational path but my purpose. Blood disorders may be lifelong, but so is advocacy. And I plan to use my education and my voice to bring more visibility, compassion, and understanding to these overlooked conditions.