When a toddler is two years old their focus is on toys and snacks. However, when I was two years old my focus became my health and how I would navigate my little life having an invisible disease. The trajectory of my life immediately changed when I received the diagnosis of Ulcerative Colitis (UC). Ulcerative Colitis (UC) is an inflammatory bowel disease that affects the gastrointestinal tract. When the lining of your colon, rectum, or both becomes inflamed, Ulcerative Colitis (UC) occurs. Once ulcers or tiny sores are produced on the lining of your colon, this is a sign that there is inflammation, which can start in your rectum and continue upward, sometimes implicating your entire colon. The inflammation that occurs, can cause your bowels to move the contents rapidly and empty them frequently. Symptoms include blood, mucus, stool, diarrhea, pain, fatigue, and weight loss, all at the same time or in any variation.
In my case, I had it all at the same time. Symptoms do not last a day, but weeks, months, and sometimes years. Did I forget to mention that the frequency of how often you have to use the bathroom in one hour can exceed double digits? This pattern of symptoms and toilet usage can
last hour after hour, day after day, and month after month while on the best medications in the best hospitals. The emotional, mental, and physical toll this takes on a life at any age is horrendous, let alone for a toddler. There is hopelessness because no doctors or parents can make these symptoms or feelings disappear. I had to live through it and hope there were better days in my future. This began my personal challenge and lifelong battle. Though it was more complicated when I was younger to completely understand living with a disease, as I grew up I accepted it more. I realized that while it is not what I thought would happen in my life; it will forever be a part of me. It is a part of who I am and my identity and it is not something that I see holding me back. Instead, I try to use it as motivation, something that I am living through and that I am proud of my success thus far.
Despite suffering tremendously through ports, infections, and ICU stays over the course of years; I have never let it hold me back from living my life the way I desire. My ultimate goal is to become a family court judge. I am thriving and had a 3.8 unweighted and 4.0 weighted GPA with five Dual Enrollment college classes completed by the age of 16. I am happily looking forward to completing my senior year, high school graduation, and beginning my HBCU experience. I have been chosen as a Junior Class Representative for Student Council, selected into Beta Club and National Honor Society, was on Varsity Step Team, thoroughly enjoyed Mock Trial, was in a professional musical, and am actively involved in Usher’s New Look Leadership Academy. Through all of this, I still find time to volunteer at local elementary schools which is fulfilling and gives me a sense of hopefulness when mentoring and reading to little kids.
The diagnosis of having an incurable and invisible disease is not how I would have envisioned my life, but what I have learned from this experience is the strength and quiet resolve I possess. UC has given me more than I could imagine when it comes to knowing how capable and resilient I am when facing obstacles.