During the height of the pandemic in 2020, we dropped my father off at the hospital due to him experiencing persistent, throbbing headaches and increasingly blurry vision. Later that week, we received a phone call from the doctor. Glioblastoma. What even is that? I would soon learn that it was stage four brain cancer. All the doctor could tell us was to spend as much time together as possible.
My mom quit her job and I decided to continue going to school online. We were determined to take care of my dad especially as he got worse. He would soon lose his ability to talk, his ability to walk, and the right side of his body was essentially left paralyzed. I would feed him, bathe him, brush his teeth, and help my mom carry him up and down our apartment stairs to his appointments. On August 6th of 20203, he experienced two back to back seizures and took his last breath.
His death affected me in more ways than one. How could something so horrible, so frightening, teach you the most important lessons in life? His death ignited my passion to help others experiencing a similar journey. From that moment on, I knew that I wanted to do everything in my power to prevent others from experiencing that major loss of autonomy, from experiencing the horrors of losing yourself or the person you loved. I have taken part in runs such as the Turkey Trot for the Glioblastoma Research Organization in order to raise awareness and funds for research. However, there is one experience in particular that has made the biggest impact on me.
Last year, my family was fortunate enough to receive a scholarship to advocate at Head to the Hill on behalf of the National Brain Tumor Society (NBTS). We met with representatives of California and with our senator. We advocated for the BRAIN (Bolstering Research And Innovation Now) act and for a dedicated day in July for Glioblastoma awareness. It is extremely important to inform the government of the funding needed for diseases such as deadly and life destroying diseases. During my time though, I found meeting other advocates to be the most profound experience. I met people from all over the country as far as New York and as close as Arizona. I met patients, caregivers, nurses, doctors. Fathers, mothers, sisters, brothers, wives, husbands. All these people who had been touched by a brain tumor in one way or another. I saw my father in those patients, my mother in those caregivers, and myself in those doctors. I felt all kinds of emotions: sorrow, compassion, determination. I felt my passion ignite within my soul.
My father taught me how short life is. He taught me how important it is to help others and to continue to pursue your education. No matter what career path I choose, I know that I want to continue to aid the brain tumor community. We need more funding, more awareness, and we need better qualities of life. I plan to obtain my biology (BS) degree in order to set myself up for a career in neurology or neuro-oncology. This scholarship would bring me one step closer to my goal of having better treatments, an extended life expectancy, and a better quality of life. I don’t want anyone else to experience or see the horrors that my father experienced. I also want to start my own organization to increase awareness and funding for brain tumor research. I am committed to aiding the brain tumor community, no matter what.