My grandmother hid her dementia until it was far too obvious to hide anymore. My grandma Cathy was a very intelligent person, having worked as a medical stenographer at a time where women were expected to stay at home full time. She spoke Russian, French, and Mandarin as well as she spoke her native English. She loved rock and roll, especially Elvis, and she had a strong creative spark, along with a powerful drive to learn.
However, by the time my father was 17, there were cracks. Catherine had fits of anger and strong paranoia, and by her own admission disliked men and distrusted other women. Ultimately, my father was forced to leave home at 17, and attended college at Johns Hopkins. This drove a wedge between him and his younger siblings, and my grandfather, Grandpa Bob, remained oblivious to all of this.
I only have one true memory of my grandmother. My family had me later in life, and she was slipping further. I was four when I last saw her, she was visiting my family, which was rare due to the distance. My family lives in Minnesota, and my grandparents resided in Mississippi. My memories are hazy, but I just remember her seeming so very tired all of the time from everything. Her memory was going as well, she couldn’t remember my age, or sometimes even my name, but she lit up when she saw me and remembered that she had a granddaughter. I was too young to understand why Grandpa Bob seemed so disinterested in her, or why she never seemed to remember things quite right.
When I was around ten, the mask broke completely. It came out that Catherine’s paranoia was worse than anyone had realized, and she had formed an unshakable belief that my grandfather, her husband of fifty years, was a serial killer, specifically the Zodiac killer. She had stacks of literature and newspaper clippings about the case, had taken samples of his handwriting from crosswords, and even at one point hired a P.I. to tail him. She held this belief to the end of her days. I honestly wish I was kidding.
Catherine was placed in a home for patients of dementia and Alzheimers, and taken good care of. I did not see her again in person, but she was well taken care of, with my grandfather visiting her, though he did so less and less as time went on. Given that they lived in Mississippi, and she didn’t remember I existed, my parents thought it would be less painful if I didn’t see her. My family just carried on without her, as best we could.
In 2019, we received news that she had been diagnosed with cancer. It was inoperable, and while they were doing some radiation therapy, the process was intensely stressful for a patient who couldn’t understand or remember what was happening or why. My family began quietly preparing for a funeral, but she held on until 2021, when she was diagnosed with COVID-19. My family video called her then, for the first time in a long time. She gained a little bit of lucidity towards the end, and smiled weakly when she saw her grandchildren. The next week, in late spring, she passed.
My grandfather carried on quickly, and married his former gardener on New Year’s Day of 2022. There had been little love in their marriage towards the end, even before the worst of her condition came out. The memorial was a mess. It was held over Zoom, and filled with pointless diatribes, self-serving memories, and towards the end, a good bit of arguing.
I found myself mourning for someone I never got to have a relationship with, someone who was strong, intelligent, and brave, but who was passed over by her family and her husband, ignored, and treated as irrelevant by the people who had loved her. I learned that dementia is a slow thing, and by the time you notice it taking hold, it has often already done massive, irreparable damage to the memory and psyche. I learned that it is also a very lonely thing to feel, when you don’t remember anyone around you, and don’t trust anyone at all. It is something that I would never, ever wish on anyone, and I sincerely hope that my research in the future will help the people suffering it, even if only a little bit. No one deserves that heartbreak, and no one deserves to forget and be forgotten in turn.