Good day, I'm McKinzie Adams and I've been having seizures ever since I was 18 months old. I was born mostly deaf, and though I have since had procedures to improve it, it was difficult to grow up not being able to fully understand the world and function in it. I was on a IEP from preschool up until the start of middle school to fit my needs. I couldn't play certain sports in school since difficulty breathing would be a trigger. I would be anxious a lot of the time since I'm also triggered by fatigue, and my insomnia plus sleep apnea made me average about 5 hours of sleep at night. The first doctor I remember going to didn't even believe me at first. He thought I was simply either unknowingly faking it, or doing it for attention. Since he was a professional, my parents went along with it. They took off my medicine for months. Eventually they took me to a different doctor. Scheduling appointments has always been difficult. The closest neurologist is a 3 hour drive from my house and often has a waiting period extending multiple months. Thankfully, I secured an appointment and schedule and EEG. On June 15, 2023, I was officially diagnosed, for the second time, with epilepsy. I started taking 500mg of Keppra everyday twice a day, but showed little improvement, so they moved me up to 750mg twice a day. I am currently on 1000mg everyday twice a day. Having epilepsy does have some limitations. The biggest by far, at least for me, is driving. I haven't been able to drive since 2022 because of my seizures. It makes me feel like I'm stuck between a rock and hard place because I either choose between going against my doctor's orders and driving, which is a hazard to me and others, walking everywhere, or relying on others to take me.
Since I'm alone at home and both my parents work, it is a struggle to get to places on time. Some of my classmates even make fun of me for this as well. Idaho lets you get your license at 15, which is freshman year for some people. However, I'm a senior and still rely on my friends to take me places. They say they don't mind, but it always makes me feel like a burden, especially since I live in the opposite direction of town. I began wearing a medical alert bracelet two years ago and finally got put on a 504 this year. I had to reconsider my career options. Growing up I wanted to be a nurse, but many states won't let you work in the medical field if you have issues such as epilepsy or are seizure prone. I am currently leading towards something in either psychology, sports media, or environmental science. These are some of my biggest passions, I find so much joy in them. I've taken similar classes at the College of Southern Idaho. I've done well in them, which makes me feel so proud and accomplished, it makes me feel like I can actually do something.
However, I want to go to the University of Minnesota-Twin Cities, which has a steep cost for out of state students. I am 10's of thousands of dollars short of affording tuition, and my parents say they won't be endorsing the loan. I don't blame them for this, in fact they shouldn't have to pay my debts, but it leaves me struggling to find the funds to go to my dream school. If I were to receive this scholarship, I would like to try and advocate for people with epilepsy. Although it creates setbacks, it doesn't have to stop you. You are stronger than epilepsy and still amount to great things and achieve an education and/or a great job. People who struggle with seizures should still be able to live life to the fullest. I would like to teach people the importance of understanding seizures. I've had classmates have grand mal seizures in the middle of class, without a teacher in the room, and never did anything to help, nor get someone to help, because they didn't understand. Knowing how to help can make such a difference in people's lives. Thank you so much for providing the opportunity to apply for epilepsy-specific scholarships and giving us a chance at a post-secondary career.