Manor Early College High School
High School
2021 – 2025

I read books multiple times a week.

I read books multiple times a week.
I was recently diagnosed with Ehlers Danlos Syndrome, or EDS. It all started last year in October when my skin started feeling weird. Then painful. Then unbearably painful. It hurt to wear clothes, for people to touch me, to be in the wind. It even hurt when my hair would brush against it. It took a year of lab work, genetic testing, and visiting one doctor after another to find out the cause. In reality, I have a very difficult life ahead of me. EDS not only causes the skin neuropathy, but other issues. I can't walk long distances, my joints can pop out of place without warning and my circulatory system doesn't work like it should. There are limits to what I can do. But through it all, I began to find the humor in it, the silver lining of the situation. Now, as I look back, I realize that EDS has become both a burden and a blessing. It forced me to slow down and find the beauty and humor of even the most hopeless of situations. While the pain is still there, I’ve learned how to treat my body like an old friend instead of a betraying foe. My college career isn't going to look like everyone else's. I may be slower to get to class, or my chronic fatigue may get in the way of studying, but I'm going to get my degree. And I'm going to do it my way.
High School
2021 – 2025
Volunteering · American Legion Auxiliary
2021 – Present