It may not look like much, but my chair was my "home away from home." It was a chair at Boston Children's Hospital's Infusion Center. When I was ten, my knee swelled to the size of a grapefruit. Soon, my other knee, wrists, and ankles were swollen and in pain. I was admitted to Boston Children's Hospital (BCH). I still remember the pop of the J-Tip as I received my first IV, the antiseptic smell of the hospital, and the pounding of my heart from fear. I was diagnosed with Polyarticular Juvenile Idiopathic Arthritis With Systemic Features (JIA). In basic terms, my immune system attacked my joints, causing them to swell from inflammation.
My JIA makes life challenging because it's an invisible illness. I could be running on the field or handwriting an assignment without anyone knowing my joints and wrists hurt. At first, I saw myself as a lost cause, but then I sat in my chair, where I had two-hour IV infusions, every three weeks, for the next six years. Over time, what began as a place for healing soon transitioned into a place for personal growth.
Sitting in my chair, I signed up to volunteer with the Arthritis Foundation (AF). I became more involved as I learned about JIA and the need for rheumatology health professionals. When I was fifteen, AF asked me to be the Youth Honoree for the Massachusetts Jingle Bell Run (JBR) and the following year to be one of the Co-Chairs. Giving speeches to hundreds of Pfizer employees at a kickoff event, and to runners, other volunteers, and doctors at the JBR, made me a more effective communicator. Cold-calling countless people for donations taught me perseverance. Participating in strategy sessions for JBR with adults and medical professionals made me quickly mature. I am so grateful for my time volunteering with AF.
Sitting in my chair, I learned about BCH's Teen Advisory Committee (TAC). Since I was fourteen, I have been a member of TAC, collaborating with staff and doctors to enhance the programs and practices affecting teen patients at BCH. Whether participating in Zoom strategy sessions with a sister hospital in Spain, advocating for legislation on Beacon Hill, or directly speaking to healthcare workers, being part of TAC has also helped me grow. My proudest accomplishment was collaborating with nurses at BCH's infusion center to minimize pediatric patients' fear of IVs, specifically ways to improve using J-Tips, hot packs, arm placement when inserting IVs, and band-aid removal. Even though I was only a patient with no medical training, the nurses implemented several suggestions. Like volunteering with AF, volunteering with TAC has taught me that I can be an impactful advocate regardless of my age and experience.
Sitting in my chair has made me passionate about a career in nursing. Since I was ten, I had a front-row seat to watch each nurse care for their patients. My career goal is to work as a nurse, earn my MSN to become a nurse practitioner, and then earn my DNP so I can pursue a career in teaching or research.
It's been almost one year since I last sat in my chair because I can self-inject my medication. My JIA does not define me, but it has matured, empowered, and inspired me to help others. Looking back, through my treatment and volunteer experiences, I have learned to be an effective advocate and communicator, persevere in the face of adversity, be grateful for every success, however small, and contribute to the communities that supported me during my time of need. In college, I want to expand upon those experiences to impact how I view and contribute to the world in the future.