Returning to school after 23 years can be a daunting experience, especially for a special
needs family like ours. Two of our three children have significant disabilities that require a
large amount of time and attention each day. Because of this level of care, there must be a
primary caregiver. For the past 22 years, that caregiver has been me. I have devoted myself
to providing whatever they need.
When I decided to go back to school, I knew that big changes were necessary. One of those
changes was accepting that our income would be very limited while I pursued my
education. This was a sacrifice my family willingly made, understanding how important this
journey is for me and providing their full support.
When our children were diagnosed, we were thrust into a whirlwind of therapies and doctor
appointments. Thankfully, we live near several pediatric specialists. However, routine
healthcare through family practice was a diAerent story. Countless times, our family has
faced dismissal from providers who lacked the necessary training and awareness.
Individuals with disabilities often present illnesses diAerently from typical patients.
Nonverbal patients can be especially overlooked, as they cannot verbally describe their
symptoms. As a result, we frequently found ourselves in the emergency room due to
conditions that had been missed. I feel compelled to change the way family practice visits
are conducted for families with diverse abilities.
By becoming a certified family practice nurse practitioner, I can accomplish this goal. Every
patient deserves to be seen and heard during their healthcare experiences. Parents should
be taken seriously regarding their concerns about their child's health. Patients deserve to
be communicated with in a manner that is appropriate for them. I want not only to provide
this level of care for my patients but also to raise awareness about this pressing need.
There is a significant gap in the care provided to these patients.
Additionally, I aim to provide holistic care to the entire family. Holistic nursing considers all
human dimensions and how their basic needs are met in health and illness. Caregivers
often neglect their health concerns while focusing on others. They must be taught to
prioritize self-care, including medical care, mental health support, nutrition, community
resources, and more. Caring for caregivers should be a top priority for all providers,
whether they work with the elderly, individuals with disabilities, or young children.
My children have taught me countless valuable lessons and continue to inspire me every
day. They are a blessing and deserve to be part of the community with the same privileges
and rights as everyone else. This is what I strive to accomplish through my volunteer work. I
founded and led a non-profit organization called the Children's Autism Support Team
(CAST). Through CAST, I spoke to rotary groups, state representatives, local governments,
and support groups about the importance of including individuals with disabilities. Our
largest annual event was the CAST Family Fun Day, held each spring. This fully inclusive
event at the park provided free food, bounce houses, sensory tents, and a resource alley for
families and friends to come together and celebrate, all thanks to local donations.
I have been profoundly impacted by the disability community in our area. Because of their
influence, I am taking the necessary steps to elevate the level of care for patients. With my
degree, I will be able to provide that care for families like mine and many others.