“I Survived, I Thrived, I Lived”
Many people go through many different things, from birth to death, they’re always struggling. But this isn’t their story; it’s mine. What I’ve been through has taught me many things. It’s taught me that I can use my story to help others. Most importantly, it’s taught me that I’m a fighter not because of what I’ve been through but despite it.
In August of 2011, when I was four years old, I was diagnosed with a tectal glioma tumor. Nine days before I turned five, I had brain surgery to put in a VP shunt to combat the symptoms of hydrocephalus. Between the ages of five and seven, I had three shunt revisions. A shunt revision is when they replace the part of the shunt that doesn’t work. They had to replace the top part of it during my shunt revision. A VP shunt has three parts: the ventricular catheter ( in the brain), the valve (which controls the amount of spinal fluid that flows through it), and the tube that empties into the abdominal cavity.
In early 2011, before I was diagnosed with my tumor, I was diagnosed with strabismus ( a floating eye). The hydrocephalus caused the floating eye. When I was seven years old, I had surgery to fix the floating eye. In early 2015, when I was eight, I got the news that my tumor had grown. It grew from the size of a penny to the size of a quarter. On March 20, 2015, I had a port placed for chemotherapy. The chemo lasted for seventy-two sessions, the last one on May 20, 2016. My port was removed on June 30, 2016.
I was stable for a few years until early January of 2018. I had another shunt malfunction. I was life-flighted up to Indianapolis and had an emergency shunt revision and a third ventriculostomy. A third ventriculostomy is where they drill a hole in the floor of the third ventricle to help ease the pressure. After I woke up, I stayed in the hospital for a week and a half. This brain trauma left me with chronic headaches.
Today, as I’m writing this, I’m an eighteen-year-old senior with high honors. For a long time, when I was little, I was sure I would never make it to high school. Due to my tumor causing cognitive issues, I was placed in special education classes in kindergarten. In third grade, I was switched out of special education classes and into regular classes. In eighth grade, I was one of the seven people chosen to take Algebra I. I got an A in the class and was able to take Geometry in my Freshman year.
I’ve always wanted to help people, whether as a nurse, an EMT, or something else. Most of all, I want to help kids and people like me. I want to be the person for them that I didn’t have growing up. I want to be a child life specialist so they’ll feel less alone. It feels like a fire burning inside me, like it’s what I’m meant to do. Everything I have been through has taught me that I can do anything I put my mind to, no matter how difficult. I share my story to give others hope and to inspire them to keep fighting. I share my story to take my power back I want to make people see that no matter what they think, I will fight for my dreams, big or small, or how far away they are. I survived, thrived, and, most importantly, learned how to live.