One evening, as I was giving my brother his daily medicine through his g-tube, a lightbulb turned on in my head. My dream job changed frequently as a kid, from a teacher to a police officer to a YouTuber, and none of these dreams stuck. But at that moment with my brother, I realized the one role I could never get tired of was being his “helper.” That’s where my passion had always been.
My brother was born severely premature at just 23 weeks, tiny enough to fit in the palm of an adult hand. He survived, but with lasting consequences: severe lung disease, cerebral palsy, deafness, cortical vision impairment, and a need for a feeding tube. I was four years old when he was born. I didn’t fully understand the severity of his complications, but I knew life was different, forever.
As I progressed throughout my childhood, my family’s life revolved around attending to my brother’s health. From being suddenly awakened at 2 a.m. on a weekday for emergency hospital visits, learning how to use medical equipment, and going to weekly therapy sessions after school, I realized from a young age my life at home was much different from my friends.
Early on, I had to develop patience and maturity. I have spent countless days at Children’s National Hospital in Washington, D.C. This includes several holidays and birthdays as well. I remember doing my math homework on the hospital floor in the emergency room in first grade. I still have the gray clipboard my dad bought for me to do my homework at his physical therapy sessions every Tuesday and Thursday in third grade after school.
I can recall more times than I’m proud of when I wished to have a “normal” life, a “normal” family. I felt isolated at times because I couldn’t relate to my friends and their sibling stories. I didn’t have the annoying little brother who got on my nerves every chance he got. Instead, I had a little brother who received awkward stares every time we went out in public because of his bulky wheelchair and the circular device taped to the right side of his head: a cochlear implant.
It took me a while to accept my family’s differences. Despite all the surgeries and procedures my brother has endured, despite not being able to walk, talk, or eat by mouth, my brother is undoubtedly the happiest person I know. I have learned through him that different doesn’t mean wrong. He is my symbol of strength.
During hospital stays, I was a young, curious girl who was heavily involved. Every time I saw a doctor pull out a cord or a monitor, I would always ask, “What’s that?” or “Why are you doing that?” I found the medical field fascinating, and throughout my years, I’ve acquired a great deal of knowledge. These lived experiences sparked my interest in the medical field and a desire to help people with complex medical needs in underserved communities.
Throughout all of this, my education remained a priority for me. I’ve learned to adapt and persevere through hardships to accomplish my goals. These years have shaped my work ethic, ability to handle stressful situations, and my compassion for others.
If nothing else, my brother has taught me to embrace the little things in life. My brother has shaped my perspective on the world. I recognize the importance of accessibility, inclusion, and the little things that most people overlook. I plan to dedicate my life and work to advocating for the needs of children like my brother!