I have seen firsthand the effects of Dementia not just on the patient, but on the loved ones who only want the best for their family. I always thought my dad was one of the strongest people alive. He is a public high school English teacher in a Title 1 district in Houston who still takes time at home to play with his two kids and complete all of his home responsibilities. It was not until my Lolo, his father, died when I was in middle school that I ever heard him cry. It broke me in a way I was not prepared for. I ran to my little brother's room and immediately hugged him and began sobbing. After flying to Chicago for the funeral, I figured things would get better, but it seemed they have only gotten so much worse. When Lolo passed, my grandmother’s Dementia emotionally destroyed my dad. His relationship with his mother helped me realize how important it is to solve the puzzle of this disease. It made me want to start down a path where I could take my passion for marine biology to research more about this heartbreaking disease.
My Lola, my grandmother, is your typical Filipino immigrant mother. She was hard on her kids, but she loves her grandkids (especially the boys). She made sure all of her kids had respectable careers like a lawyer, nurse, or teacher whether that is what they wanted or not. She worked hard to make a life in America for herself, and now she expects to be taken care of. Her relationship with my father always seemed a little strained, but it was clear there was love and respect present. However when her husband died, a part of her did too. The man she loved for over 50 years was gone, and as her Dementia progressed, she believed she had no one who would care for and protect her from the world’s many dangers. She was diagnosed with Dementia soon after the funeral. At the time she only seemed to be forgetting small, simple things. She was stubborn, as all Tanigs are, but she was not violent. She was given medication, and all was free to continue as it was.
I wish I could say my family started healing after losing my Lolo, but it felt like it was just falling apart. When it was time to start dealing with her husband's belongings, my Lola refused to let any part of him go. When her physical health degraded to the point where her house became unsafe for her frail, thinning body, she refused to live anywhere else. My dad took her to his sister’s house because my Lola did not have air conditioning and the summer heat was unbearable. In response, she pulled a kitchen knife on him. She believed her kids were kidnapping her so they could have Lolo’s house and car to themselves. She only saw suspicion and scheming in her own children. Without her husband there, it was up to her to protect his legacy, and she believed her sons and daughter were trying to steal it all away. She would not even claim my dad as her son, believing he had somehow changed to be someone else. My father and his siblings continued their duty to cook, clean, and care for the woman who raised them, but it felt like that day, they had all lost their mother.
I have seen my Tito, my dad’s older brother, work tirelessly over the family’s finances only to be berated by my Lola. I have seen his sister rearrange her entire life to live closer to her mom in case of emergency. But none of that hurt as much as watching my dad stand there while his own mother accused him of kidnapping at a family gathering. This is the man who has dropped everything to console me during anxiety attacks. He has stayed up late to make sure I'd get home after a football game safely even though he has work in the morning. He has sat down with me at the dining room table to work through problems from kindergarten math to how to pay for college. I have known this man to be nothing but good, and to hear my Lola believe so fully that he would do harm to her infuriated me. But what broke me was how in response to her accusations he merely stared at her with solemn eyes and said, “Ok.” He does not deserve to have a mother who hates him. His siblings do not deserve to have to care for a woman who hates them. However, they are all good people. They are good children who will continue to care for their mother because they know this is not their mother. They know her mind and words no longer belong to her, and somewhere in all the confusion she still loves them.
Watching my family struggle to take care of my Lola has taught me how Dementia affects more than just the victim. Dementia ruins relationships and people’s memories of their loved ones. It creates fear and suspicion where there should be love and trust. My family has remained patient with my Lola, but they have lost faith they once held for her. As she loses the good memories of her family, her family loses the good memories of her. This experience has helped me realize how I can use what I am learning as a marine biologist to potentially create a cure for this disease. I want to go into venomology, the field of study that takes venomous compounds, specifically from marine life in my case, to create antidotes and cures to solve medical crises. I want the ocean to teach me how we could stop the effects of this horrible disease before more families are torn apart. I believe there is a way to end this disease, and our waters may hold the answer. We just need people who care to look hard enough for a solution, so families can keep their good memories and continue to love and trust one another the way a family should.