What made simply "showing up" to school a challenge for me was the complications I had with my heart problem. I have Long QT Syndrome, a rare condition that causes an irregular heartbeat. Its symptoms include Fainting, Seizures, Cardiac Arrest, and Sudden Death. Before I was diagnosed with it, I had several fainting spells at school. For years, I was afraid to go to school because of people's instilled fear that one of these things would happen to me.
The first time one of these episodes ever happened was when I was in second grade where I stood up, was dizzy, and then fainted, landing face-first onto the table in my classroom. I remember waking up confused and then panicked when I realized that I had chipped my front tooth. When I went to the doctors, they didn't think much of it and told me that it happened because I am tall, and thin for my age. They told me to drink a lot of water. I also thought nothing of it, I was just worried about the fact that I looked like a hillbilly until I got my front tooth filled in.
After the first fainting spell, I went to third grade which was a pretty chill year. No fainting spells happened until fourth grade after I had finished State Testing, I grew light-headed, and I just passed out, this time I landed backward, my head bent over my chair. Of course, when I went to the pediatrician, they just said that I was dehydrated. Yet, it kept happening. I would pass out at school once every two weeks.
It wasn't until the Friday of Memorial Day Weekend, 2017. When the whistle blew to conclude recess, I just went out. Boom, I fell from the bench I was sitting on, face first on the floor, with no time to process what was happening. I got a concussion, and I felt awful after. My mom was concerned, so she brought me to the hospital. When we got to the hospital the doctor who was there was immediately concerned and the next thing I knew, I was diagnosed with Long QT Syndrome.
When I returned to school after that, this fear was instilled in everyone around me. When word got out about what had happened, not only were the teachers afraid, but students were scared as well. Since they were afraid, in fifth grade I had to carry around a walkie-talkie, I wasn't allowed to participate that much in gym class, and if I had to go somewhere that wasn't the bathroom, I had to have someone go there with me, and it went to the point that my school nurse tried to exclude me from the field trip.
With everyone around me being afraid, that made me afraid as well. Even though nobody around me knew anything about my condition, or had seen my perfectly normal EKGs since I was put on my medication. Their belief that something bad would happen to me made me believe that something actually would. It took years of my mother's assurance, my cardiologist's assurance, and years of added-on dance classes for me to realize that it was true. I didn't need to be scared because nothing would happen, I could go to school like a normal person, go on field trips like a normal person, and do anything the other people could do. Now that I have adapted to my circumstances, nobody else believes that something bad will happen to me.