In the middle of my junior year of high school, I gained twenty pounds in three weeks. The weight stretched out my skin, and I wore my brother’s jeans because my pants wouldn’t fit. Just walking between classes at school was exhausting, and the passive-aggressive comments people made about my weight mortified me. I felt out of control, and insecure in my own body. During that time, I was dealing with the pressures of four AP exams, two varsity sports, and several extracurriculars, as well as leadership positions within my school and local communities. At first, it was easy enough to blame my unusually-extreme fatigue and weight gain on this stress, but eventually it was clear that something was wrong and—one doctor visit later—I was diagnosed with a 1-in-50,000-kind-of-rare kidney disease: Nephrotic Syndrome.
My kidneys couldn’t properly filter fluids, causing my body to retain almost four gallons of water. I was prescribed heavy doses of immuno-suppressant steroids along with a restrictive low-sodium diet, but the next few months were still a rollercoaster of remission and relapse. I lost fifteen pounds of water weight within a week, leaving painful muscle aches and stretch marks all over my body. Later, when I tried to taper my medication, all of the water came flooding back. Nephrotic is so rare that my doctor didn’t understand how to treat it, and she kept changing my prescription to keep up with the disease. The heavy-dose, long-term steroids took a toll on me; I struggled in school because I was missing class time to use the bathroom every half-hour, fighting exhaustion from poor sleep, and dealing with rapid changes in my body weight. The steroids also caused intense, unpredictable mood swings, making me sob uncontrollably for no reason, causing my mind to race with stress, and shortening my temper even with the most loving and patient people in my life.
I was prescribed a renal diet, focusing specifically on low-sodium, as well as including other aspects that force me to watch what I eat with extreme care. I no longer eat at restaurants, and in fact, eat almost exclusively non-processed foods. I have learned how to cook for myself, as well as how to make healthy choices. Falling victim to a rare kindey condition is something I had no control over, but the way in which it has forced me to adapt my lifestyle has afforded me invaluable lessons in how to not only live a healthier life, but to understand my limits and my potential.
Despite enduring heavy steroid treatment, extreme dietary restrictions, and surgery because of this kidney condition, I still earned straight A’s and remained a leader in my community. I refused to let Nephrotic deter my academic/professional outcomes, but rather teach me to recognize when to push my limits, when I need support, and that asking for help is a sign of strength, not weakness.
I’m in remission and manage my condition with medication and lab work. Nephrotic Syndrome has dictated the past year of my life, preventing me from being a normal teenager. However, it also improved my social awareness, allowing me to understand that everyone’s dealing with internal, invisible struggles that I couldn’t possibly understand, having never walked in their shoes. I’m hopeful about where I am, and what I know I can achieve in the future. Looking back, I see that Nephrotic Syndrome has ultimately made me a stronger person.