My path to knowing that I want to become a nurse is not the traditional one, but it has been incredibly formative and will undoubtedly benefit my future nursing career. I discovered a passion for the human body through my experience with a rare genetic condition I have called Ehlers-Danlos Syndrome (EDS). EDS affects my connective tissue and causes heart, hip, and joint problems, which has led to constant pain and frequent medical appointments. In the EDS community, we are referred to as "zebras" because we are rare and complex. This rare condition, combined with experiences of being dismissed or gaslighted by some doctors, motivated me to learn more about my body and treatment options.
I first explored my fascination with the human body in high school through anatomy, which I truly loved. My first major occurrence with EDS came when I was diagnosed with hip dysplasia. Experiencing pain at a young age pushed me to research the pelvis and femur to better understand my condition. Simply defined, hip dysplasia occurs when the hip socket is not formed properly, resulting in early-onset arthritis and chronic pain. According to experts, only 1 in 1,000 babies are born with hip dysplasia—I was that 1. My first surgery was in January 2022, my second in June 2022, and I am scheduled for a third this coming February. During the first two surgeries, the surgeon performed a Periacetabular Osteotomy (PAO), breaking and reshaping my pelvis and inserting four screws. Complications included going into septic shock, requiring emergency surgery and a stay in the PICU at Cincinnati Children’s. I will never forget the nurses who cared for me and saved my life.
Recovering from these surgeries meant missing pivotal events of my teenage years, but I understood the importance of these interventions for my long-term mobility. Without them, I could be wheelchair-bound by age 30, unable to engage in activities I love. Beyond hip dysplasia, I have faced additional health challenges, including Chronic Compartmental Issues (CCI), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS). These conditions have added layers of complexity to my care, requiring me to manage chronic fatigue, heart rate irregularities, dizziness, and unpredictable allergic reactions. Navigating these health challenges has strengthened my resilience, taught me the importance of advocacy, and deepened my empathy for patients dealing with complex or chronic illnesses.
These experiences, though difficult, solidified my desire to become a nurse, specifically a pediatric nurse. Nurses play a crucial role in patient care, from administering medications and assisting with daily tasks to providing emotional support. Witnessing excellent nurses in my own care taught me the qualities that make a nurse stand out and the type of nurse I aspire to become. My journey with hip dysplasia, EDS, and other chronic conditions gives me a unique perspective that allows me to connect with patients on a deeper level and understand the physical and emotional challenges they face.
I am currently a junior in nursing school, focused on building the skills and knowledge to provide excellent care. My immediate goal is to work in the Post-Anesthesia Care Unit (PACU) after graduation, supporting patients recovering from surgery. Eventually, I plan to return to school to become a Nurse Practitioner, specializing in pediatric patients experiencing chronic pain. This goal is deeply personal, informed by my own experiences with EDS, chronic pain, and navigating the complexities of rare medical conditions.