Arne Garborg once said, "To love a person is to learn the song in their heart, and sing it to them when they have forgotten." Alzheimer's disease is a tragic and heartbreaking illness to watch anyone go through, especially a loved one. From an early age, I saw firsthand the sad reality of Alzheimer's disease in my great-grandmother and later in her daughter, my great-aunt. Both women suffered from the harsh disease and went on to gain their ultimate reward not long after. As someone who is fascinated by psychology and pursuing a career in the healthcare field, Alzheimer's disease and dementia-related illnesses have always been an interest of mine because of the role it has played in my family.
As a child, I remember very little about my great-grandmother (or mamaw as we called her), besides her illness. She married my grandfather at a very young age and had three children not long after, two daughters and a son. Her two daughters named Jackie and Rhonda, and her son named Ronald Jr. Unfortunately, after my father was born, she and my great-grandfather lost my grandmother who died from colon cancer at age 24. After my grandmother's passing, my great-grandparents took my dad in as if he was their son. Growing up I remember driving to their house on weekends and holidays to spend time with them. At some point during my childhood, my mamaw developed dementia, in which her character and personality were almost unrecognizable.
At first, the symptoms were manageable. Mamaw would forget things here or there. She would forget what day it was, an appointment, etc. However, not too long after, she began to forget more important things. Such as places she was going, things she had been doing in the house and eventually people. My great-grandfather, refusing to put her in a nursing home, accepted sole responsibility for caring for her. Like anyone who has witnessed Alzheimer's disease, they know that it is not simply forgetting things. Her personality, while still sweet, was now volatile and uncontrollable. One minute she was fine, the next she was accusing my great-grandfather of random things. She also had begun to hide things throughout the house. However, since she would forget where she had placed them, she was convinced people closest to her were stealing from her.
Eventually, with my great-grandfather's declining health, he was forced to put her in a home, yet still visited her for hours every single day. Somewhere in between her moving into a nursing home, she had lost all ability to walk and talk. I remember visiting her and my family and I simply sitting there talking all together at her but never with her. Maybe a year before her passing, my great-aunt Rhonda was also diagnosed with Alzheimer's disease. While my great-grandmother's illness was bad, my great-aunt's was much, much worse. From the time she was diagnosed to a little after my great-grandmother's death in 2015, she was completely consumed by the disease. She passed away about 6 months after my great-grandmother's death, also leaving behind her husband and family.
Throughout this time, I have learned how serious Alzheimer's disease is and how important research for the illness should be. As of now, we have been able to identify certain genes related to the disease but have not found a cure. This is just one of the many reasons I find this aspect of future academic research fascinating. I would love to contribute to it in some way in the future whether researching potential treatments in a lab or working hands-on with patients for potential therapy. I also have seen through the heartbreak of the illness the joy that comes from letting your loved one know you love them and care for them. Even when I know my great-grandmother could not remember me any longer, every time we visited her in the nursing home, it put a smile on her face. I believe that Garborg understood this by saying "and sing[ing] it to them when they've forgotten." As loved ones of those suffering, no matter how hard it is when they have lost their song, we must always sing it to them.