I was born with an AV Canal Heart Defect at a week old. I had three holes in my heart and had open-heart surgery at 10 months old. I then had another surgery right before kindergarden. My heart defect affected a lot of my organs. I had breathing issues, GI issues, etc. I had a feeding tube put in a couple months old and need to be fed through a tube for the first couple years of my life. I was in the NICU for the first three months of my life, which made me fall behind typical milestones that many babies complete at a certain period, resulting in "Failure to Thrive." Because of my development being behind, I had many different therapists come to my house and work with me, like PT, speech therapist, OT, etc. I eventually got on track, but it took some time. It took me so long to get my surgery because of how little I weighed. Because of my heart condition, I was unable to keep any formula down, which caused me to lose or not gain weight in a critical time when babies should gain weight.
When I was younger, the doctors told my parents I would be small but mighty. Meaning I would be a fighter, but a short fighter. I am only four feet eleven inches because of my heart issue. Many people, even my family, pick on my height, which is something I can't control. People have told me I should be proud of my height because I fought hard to be here, but that is hard when that is the only thing people point out about me. I have been called a miget, asked if I'm a dwarf, or called an elf. Haha. I feel like people don't treat tall people like that.
I will need to see a cardiologist for the rest of my life. I currently go every year. I get an ultrasound and an EKG every time I go. It is just part of my life now. I have to be really aware of my body and make sure nothing in out of sorts with my heart. I don't drink energy drinks, I don't drink alcohol, nor vape or smoke cigarettes. All of these are very prominent in our culture. Another thing I have to keep in mind now is my ability to carry a child. If I were to get pregnant, I would have a high-risk pregnancy. I would also need to see my cardiologist more. I need to consult my cardiologist if I want to become a mother, and I probably should get genetic testing done to see if I were to have a baby, to see what chance the baby would have of inheriting my heart defect. Which is hard to hear because I think most young women my age don't have to think about it, and I do.
I try to be as positive as I can when it comes to my heart defect because I am strong. I fought a heart defect at an incredibly young age. I am proud of who I am. I personally wish there were more representation when it comes to heart defects, especially the scar I have on my chest. It would be cool to see a model have a scar like mine to show how strong heart defect babies are.